Statewide Plan for Genetic Health Qld - Community

Closed 19 Apr 2016

Opened 29 Mar 2016

Feedback updated 3 May 2018

We asked

We asked for:

- feedback about your experiences using any genetic service

- opportunities to enhance the current and future supply of services

- addionional comments

You said

You said:

- the service was comprehensive and caring

- poor support for patients and carers of rare diseases

- reduce wait time, expand services in regional areas

- better linkages and communication with genetic specialists

- integrate IT systems

- develop fact sheets and promote services

- enhance opportunities for research, education and training

We did

We did

- all responses were tabled at the Genetic Steering Committee held in May 2016

- all responses will be systematically analysed and considered in developing future service directions for the statewide health service plan for Genetic Health Queensland


Metro North Hospital and Health Service in partnership with Genetic Health Queensland is currently in the process of developing a statewide plan for Genetic Health Queensland. Please see fact sheet under related documents below for details on the Genetic Health Queensland Services and the scope of the plan.

We would like to hear community / consumer perspectives on genetic services provided in Queensland to inform the development of this plan. We would like to engage with past or current users of genetic services and also the potential users of genetic services in the future.

Should you wish to participate in this consultation please follow the link below and answer the questions in the survey. Please include your email if you are happy to be contacted should we have any follow up questions in regards to your responses.


  • Community members


  • Community feedback